With that in mind, we asked five women how using the word spoonie helps them articulate life with a chronic illness.

“The fatigue experienced by those with chronic illness is such a unique and debilitating symptom. It is not just tiredness. When I first was introduced to the spoon theory, I thought, wow, there are others who have to navigate their day this way – I felt so seen.” Mimi

“The spoonie concept helped me to understand and explain exactly how my energy is limited compared to others. It then provided me with an opportunity to connect with an incredible community, and I have felt supported as I navigated surgery, medications and new diagnoses including Crohn’s disease. Chronic illnesses can be so isolating, but the familiarity and understanding you receive from those living with similar experiences is huge.” Ali

“Without purposefully calculating it, I’ll subtly build the spoon theory into my recovery from things, or to avoid doing some activities because I know I’ve used my energy already. This is mostly when my symptoms are flaring and as I start to feel less ill I do notice being able to increase my spoons or that I have the ability to do more.” Eve

“I have lupus and being seen and understood without having to explain myself is a comforting thing. In the community it doesn’t matter what illness people have, there’s no competition, just pure sympathy and an understanding that we all have limited spoons each day and how draining that is.” Mollie

“Having ME, the spoon theory opened up the world of chronic illness communities to me. It’s not necessarily a word I use for myself any more, but I’ll forever be grateful for the people it’s led me to. These online communities aren’t without their faults, but in many ways they’ve saved me, and my day-to-day life is richer for having them in it.” Jenny @thisthingtheycallrecovery

What does the term ‘spoonie’ mean? 5 women with chronic illnesses share how spoon theory helps them